Duchenne Muscular Dystrophy Insights

Our research summaries provide insights into the latest scientific...

Latest Research

Our research summaries provide insights into the latest scientific developments. Check back in our next newsletter for updates.

Clinical Trials

Community News

Muscular Dystrophy Support CentreMuscular Dystrophy Support CentreApr 28, 2025

Nominations are now open – help us win £5,000!

For this week only, Benefact Group is running a special Movement for Good draw for charities that support health and wellbeing. Ten charities will each receive £5,000 – and we’d love to be one of them!

The more nominations we receive, the better our chances. £5,000 would make a real difference to the support we can offer. Please take a moment to nominate at https://bit.ly/MFGAwards-nominateMDSC – click the link to go straight to our nomination page. It only takes a minute and would make a huge difference!

Thank you for your support 🧡

Please note - we’re listed under NMC Midlands.

Muscular Dystrophy UKMuscular Dystrophy UKApr 27, 2025

What a weekend! From London to Manchester to Glasgow, #TeamMDUK have smashed it!

Thank you to #TeamMDUK for taking part in the TCS London Marathon, Manchester Marathon and our Kiltwalks - what a phenomenal achievement. We’re beyond grateful.

Your dedication shows the world just how much our #MusclesMatter. Together, we're making real change for the future of muscle wasting conditions.

Feeling inspired? Sign up now to be part of the London Marathon 2026 team: https://loom.ly/VlaujUc

Muscular Dystrophy AssociationMuscular Dystrophy AssociationApr 24, 2025

We are deeply saddened to learn of the passing of Steve “Mongo” McMichael, a true legend on and off the field. A Hall of Famer, Super Bowl champion, and beloved Bears icon, Mongo’s toughness, passion, and heart left an indelible mark on the game—and on all who had the honor of watching or knowing him. Beyond football, Steve was a fierce and compassionate advocate for the Muscular Dystrophy Association, using his voice and platform to champion families and fight for a cure. His strength in the face of ALS inspired many and reminded us all of the power of perseverance and purpose. Our thoughts are with his family, friends, and the entire Chicago Bears and MDA communities during this difficult time. Rest in peace, Mongo. Your legacy lives on.

Muscular Dystrophy Association Post

Upcoming Events

APR
30
Neurologic care for carriers Online Parent Project Muscular Dystrophy
MAY
13
Myotonic MD community gathering In Person Muscular Dystrophy NSW
JUN
19
Global Duchenne and Becker conference In Person Parent Project Muscular Dystrophy
JUN
20
Annual bike ride for MDA In Person Muscular Dystrophy Association
JUN
25
25th MDA Wings Over Wall Street Gala In Person Muscular Dystrophy Association